Hobbies, Compromise, and MS

I LOVE to sing! I’ve always wanted to take voice lessons, but growing up in a small town meant that opportunity didn’t exist. So now that I live in a city, I’m taking advantage of some of the opportunities here!

I’ve been taking private classical voice lessons for almost two years now, which means I started as an adult after I was diagnosed. I’ve seen too many people say they’re too old or they can’t start something new because they’re sick, but if you don’t start now then when will you? All we have is now!

Anyway, my teacher is amazing and she lets me occasionally take a break from classical to get into pop or random karaoke, which is perfect for keeping me interested and engaged. So far I have 3 songs prepared at roughly performance level, and I’m learning another one right now called “Apres Un Reve” by Gabriel Faure, who I think is one of the most brilliant composers of all time. He’s not very well known, apparently because he wrote “art songs’ (single stand-alone compositions) rather than operas. Here’s an instrumental version of Apres Un Reve performed on violin by Joshua Bell:

 

I just want to point out that you don’t need to be exceedingly mobile to sing. MS doesn’t mean you can’t have hobbies, and it certainly doesn’t mean you should give up the things you love! It just means you’ll get really good at compromise. One of my compromises is that a lot of my voice training involves learning to sound like “healthy me” even when I’m fatigued or battling cold and flu-type symptoms, which I am half the time. I don’t need to sound better than anyone else, I just want to do justice to the songs that I’m singing. I want to be able to sing in a way people can hear the beauty of the song itself, the brilliance of the composition. And maybe one of these days I’ll post video of me singing, and you can let me know if I’ve succeeded!

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Live Life, Don’t Just Deal With It!

You may have noticed that I haven’t been very active here lately. For a few months, actually. I’ve been doing a lot of thinking and I finally feel like I have an explanation that makes sense.

It’s important to me to be authentic, to allow myself to feel whatever I’m feeling and not to attempt to sugarcoat everything. I believe energy moves in cycles and it’s important to value and respect both the up cycles and the down ones.

I’ve been in a down cycle for a while. I actually had a relapse and I’ve been off work for a month, but I’m getting better and I’ll be back to my normal 13-hours-with-commute job next week.

When I say “down cycle” I don’t mean depression, I literally mean my energy is down. Fatigue and an inability to concentrate have been really debilitating issues for a few months.

I haven’t posted because (1) I didn’t feel like I had anything positive to say and there’s more than enough negative out there already, and (2) posting non-positive stuff about MS depresses me, and I didn’t want to go there.

I’ve been thinking about how to write for this site in a way that’s fun instead of boring or depressing. I’ve come to the conclusion that I should just write about me, about my whole life and the lessons I’ve learned overall, not just about MS. I mean, my life is about living, not just about dealing, right?

So please allow me to introduce myself, I’m a woman of wealth and taste! Well, not so much wealth, but definitely expensive taste lol! I’m a dreamer who loves to sing, draw, rearrange furniture, play in the stock market, and putter around the kitchen. Having MS has taught me a lot about compromise, but it does NOT mean I have to give up doing what I love. That’s what “Be Unhasty” is all about – learning to make time for what’s really important. Maybe I lost sight of that for a while, but now I’m back and I’ll be talking about living a full life, not just dealing day to day with a disease condition!

Thanks for your support! You *are* awesome!