Seriously! I’m really happy that I found another amazing example of a person loving their life, living an awesome life, despite dealing with MS (or any other medical condition.)
I’m continually adding to my list of “personal heroes”!!!
A few posts ago I mentioned that I had joined Weight Watchers and it, along with the Wahls Protocol, was ensuring I got the nutrition I need in my diet. I’d been experimenting with diets and diet modification for years, talking to doctors and nurses and registered holistic nutritionists… and usually came out with more questions than answers. Questions like:
– If I’m eating right, why do I need all these supplements?
– If YOU AGREE I’m eating right, why are you recommending more supplements?
– What do I ACTUALLY need to take, and in what dosage?
– What do I need to eat, and in what amounts, to get the nutrition I need to cut back or eliminate the supplements?
I discovered that if someone is making a living (or part of their living) selling supplements, they will always have a supplement to recommend, no matter what you’re already taking. I also discovered that medical opinions on supplements for MS vary widely. Everyone agrees that I should be taking Vitamin D, but I’ve been told anywhere from 2000 to 5000 IU’s a day, and somewhere I even read up to 8000 or 10000 IU’s. At one point, I was taking something like 14 pills at once, with all the different supplements.
I hate taking pills. I’ve mentioned that before. That was what inspired me to start looking for food-as-medicine type information. There’s nothing extra for these people to sell, no supplements or whatever, although they may push the occasional book. That’s okay, I’m fine with buying a book or two. It’s certainly cheaper than 14 supplements a month.
I was chatting with a Registered Holistic Nutritionist, who mentioned her Mom had been diagnosed with MS, and she’d found this amazing Ted Talk from a woman who had used diet modification to control her symptoms. This woman was Dr. Terry Wahls, and she went from a tilt-recline wheelchair and secondary-progressive MS to horseback and remission in something like a year, purely through diet.
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Here was something I could get behind. I was totally willing to change my diet and my eating habits, because I believed from the beginning that the answer to most of my problems was in what I was eating. I just didn’t know what to change. So I toyed with the Wahls diet. I bought her book, “Minding My Mitochondria,” and read it. Not cover to cover, since some of it was a little too scientific for me, but enough to see what she was talking about. And I slowly started eating less processed foods. And more vegetables. And less grains. Then I took the plunge and went gluten-free, which is one of the most painful things I’ve ever done – my Mom’s Italian, Dad’s Dutch, and we survived on pasta and bread. But suddenly, one day it just stopped being so awful. My biggest discovery is that I can’t use substitutes. Gluten free bread is inedible, so I just don’t eat bread anymore. Cookies and muffins, sure, because they’re supposed to be dense and heavy. I can’t do substitutions because I have a very firm opinion on what food SHOULD taste like, and what the texture should be. So I just cut most grains out altogether, and I don’t even miss them. I’m reintroducing some into my diet, on advice from a Registered Dietitian, but it’s quinoa, rice and oats, mostly, and for now only once a week. I really try to eat more nutrient-dense foods, and starches just don’t have as many nutrients.
I also toyed with Dr. John McDougall’s diet, and I tried a Paleo diet, but if something doesn’t make sense to me, or (more importantly) doesn’t FEEL right to me, I won’t embrace it wholeheartedly. No one source of information, or one type of diet, ever felt completely right to me. Until I joined Weight Watchers.
I know, I know, I sound like a recruitment poster or something. But seriously, the new system doesn’t contradict any of the dietary recommendations that I decided to follow over the last few years, and it actually makes it a lot of things easier for me. I use their system to keep track of all the fruits and veggies and animal proteins and other good things I’m SUPPOSED to be eating, and it’s actually LESS restrictive than what I’ve been doing by myself for the last while. I’m eating a lot more now, and a wider variety of food, than I was allowing myself before I had these guidelines.
This is what I’ve done to combine the Weight Watcher tracking with what I got out of Dr. Wahls’ book, and I ran it by a Registered Dietician to make sure that my new planned diet was healthy and safe – she gave me two thumbs up!
– I aim for 9 cups of water. This may sound like a lot, but I make a lot of smoothies and soups, and I count the water I use in those as well. Plus, since starting Modafinil, the persistent dry-mouth makes me WANT even more water!
– I aim for 5 to 9 servings of fruits and vegetables a day, which is easy if you like making soups and smoothies. I assume 100 grams is a serving, and I label each serving check-box with a colour: red, orange, yellow, 4 greens, blue, and white. White is NOT starch, it’s the sulfurous veggies like cauliflower and mushrooms and onions. According to Dr. Wahls, keeping track of colours helps to ensure you get a good balance of all the different micro-nutrients you need, maybe not every day, but over the course of the week.
– I aim for two servings of healthy oil; one could be a teaspoon of olive oil or 1/8 avocado.
– I aim for 6 ounces of protein in a day, at least half of which will be animal protein. (If it had a face, it’s animal protein.)
– I aim for three servings of dairy – I react funny to cow milk and cream, so I stick to yogurt and cheese, and I use a LOT of almond milk, which also counts as dairy. Not sure why, but I’ll take it!
– I aim for at least one serving of fish a week, and one serving of a non-gluten grain. I’ll increase those as I learn to cook more with them.
– Last but not least, I aim for 2000 IU’s of Vitamin D, a Calcium-Magnesium supplement, and a multivitamin. That’s it.
THIS HAS MADE MY LIFE SO MUCH EASIER! I just have a little list with check boxes, and I try to check my list off every day. No more fretting about what I can and can’t eat. No more going hungry because I can’t figure out what I should eat, or going crazy and eating EVERYTHING IN THE PANTRY. And believe me, with a fruit and veggie heavy diet, I have more problems eating ENOUGH points worth of food than I do going over my daily allowance. Also, Weight Watchers encourages writing down every little bit of food you put in your mouth, and I’ve expanded that to include EVERYTHING, meds and supplements too, and since I’m writing all that down it’s easy to keep track of energy levels and hunger levels as well.
So there’s my take on food, nutrition and diet. Just remember, what works for me may not work for you, and it took a few years of trial and error to come up with a way of eating that’s healthy and comfortable for me. I hope this inspires you to find a healthy and comfortable way for you – it’s completely worth whatever time you spend on it, in the end!
I have to admit that, even though I don’t have television (gasp!) I do occasionally go on Youtube and watch clips from the talent reality shows, like America’s Got Talent or Britain’s Got Talent or American Idol. I love them because sometimes, something totally unexpected and amazing can happen, completely out of the blue. This was one of those clips for me, and it’s NOT a normal “motivational moment” clip. I’ll explain after the video!
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So this girl comes out, dressed in pink latex to get attention, but not for the reason anyone else thinks. Her goal is NOT to get to Vegas or participate in any more reality shows, but to do something very specific: to meet Howard Stern. The REASON she is my hero is that she set a COMPLETELY DIFFERENT goal than anyone expected, AND SHE DID IT! She just dressed up in something crazy and came up with enough of a “talent” to get an audition, because she knew that’s all she needed. She IGNORED the people who said she wasn’t good enough, because they were assuming the obvious, without finding out what her real goal was. And she was 100% successful in her real goal. I may question her general sanity and taste in men, but she did what she needed to get what she wanted, without hurting or demeaning herself or anyone else. And I think THAT’S awesome!
PS Yes, I know some people may accuse her of demeaning herself by pouring herself into that pink latex dress, but I see it as a costume for the character she portrayed to get on the show. I don’t think she took anything about that audition seriously other than meeting Howard Stern. Plus, kudos to her for having the ladyballs to wear latex in public while weighing more than 98 pounds!
I know I said I’d post pictures about the house reno, and I will this weekend, but I just had to drop a note about this crazy amazing service. Mike Dooley, in his “Notes From the Universe” emails (which are very short, very inspirational, and you can pick how many you want to receive in your inbox) are personalized messages that The Universe sends to you whenever you want them. They’re all about loving where you are right now, and having hope for your goals and dreams and future.
So many of us with a medical condition we get to confront daily FORGET that the most important thing is to feel good about ourselves, no matter what our struggles are. We can’t heal if we spend every moment feeling horrible.
So here’s The Universe with a “pick-me-up” for you all!
“Multiple Sclerosis and Caregivers” is a look at the challenges of surviving in a relationship that includes giving care.
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Wow, maybe I’ve been a little selfish and a little ignorant, but because I’m not dealing with a Caregiver myself, I forgot what an important part of the equation they are. Kudos to this amazing video for pointing it out!
My MS Treatment from Tanya Asbreuk on Vimeo.
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It’s important to be able to make informed decisions on the treatments you going to undergo, especially if they’re drugs that you’re going to be on for a long time. Here I discuss the options that worked for me.
The two ladies I’m talking about or to are Lisa who runs Brass and Ivory, a site chronicling her MS journey with links to a lot of other MS blogs, and Amy who runs MS Softserve, a soon-to-be-available NPO site offering customized learning about MS. Both are amazing resources, so I encourage you to check them out!
This is so cool – I’ve connected with another lady who has MS and runs a fantastic site at http://www.brassandivory.org. (Don’t worry – if you click it’ll open up in a new window and you can still look around here later.)
Anyway, she links other blogs to her site, and she linked me! How cool is that? She also runs the “Carnival of MS Bloggers – a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis” (her quote) that I’ve submitted an article for.
This is her blog past linking “new MS bloggers” to her site:
This may seem narcissistic, linking from my blog to another blog about my blog, (say that five times fast) but it just made me feel really good about reaching out to people with my blog, and knowing there are people out there who appreciate it. So yay!
Well, darn! The video is no longer available. Sigh. Well, donate to the MS Society anyway, and I’ll try to find more (current) info on this program. Grrr.
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This is amazing! I had no idea that the MS Society of Canada has a scholarship program for people or families with MS. Since the condition can be debilitating on so many levels, it’s excellent to see the Society working with Billy Talent and Friends to help people who may not otherwise be able to afford post-secondary classes. I’m so proud of the MS Society! And of Aaron Solowoniuk, the drummer for Billy Talent, who worked with the MS Society to set up the scholarship program. Take THAT, MS!
I am so spoiled, so incredibly lucky. I am involved a clinical trial for MS and that means I don’t have to pay for my medication. At the beginning of the trial, I asked one of my nurses how much something like this would cost, if I had to pay out-of-pocket, if I wasn’t involved in the study. She told me about $80,000.00 and I thought my eyes were going to pop out of my head. I’ve lived in houses that cost less than that!
My heart breaks for Jason Da Silva, and once again I don’t understand the American Health Care system. Why do they feel so threatened by a system like we have in Canada? What’s so awful about allowing people access to free (or at least subsidized) medical care? Why do so many American people and corporations seem to think Obama is the devil for wanting to create a system like ours, in the US? If you have any ideas, tell me, because I’d sure like to understand.
Caution: Fluffee drops the F-bomb in this video so if you are offended by the F-word DON’T WATCH the video. Just go to the link I’ve posted below to donate to the MS Society of Canada directly if you want to help support their efforts against MS.
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I love “Project for Awesome!” Fluffee is a bit of a goof but he does a good job of laying out how MS can affect people’s lives. I wonder if he’s sold his piece of chair yet? Or the beanie lol?
If you want to donate directly to the MS Society of Canada, click the link below to be taken directly to their donation page. It’ll pop up in a new window. Spend some time checking out the rest of their awesome site while you’re there, too!