Renovation “Before” Pictures!

Hello! I promised to show you some pictures of the ongoing renovation, so here’s where we’re starting from. These are all “BEFORE” pictures, and if all goes well, I’ll eventually have some “AFTER” images for you too! As you can see, there’s a lot to be done, but not a lot of HARD stuff, so we can whittle away at it an hour or two a day. My Dad just retired so he doesn’t want to do much more than that either!

Entry Closet

Entry Closet

This closet was probably useful when it was next to the front door, but now there’s a boot-room addition and the closet is just blocking the light.

Disco Kitchen!

Disco Kitchen!

So there was this really, really odd mirrored pillar that the fridge was recessed into. It’s gotta go!

Kitchen Cupboards

Kitchen Cupboards

This is my pet project. I want to punch a big hole through the wall to let the light through from the kitchen to the living room. This will be interesting…

Master Bedroom Carpet

Master Bedroom Carpet

40 year old carpet in the master bedroom. Definately original, since we had to CUT it away from the wall. The walls were constructed after the carpet was laid down.

Snow! More than we've had at once in 15 years!

Snow! More than we’ve had at once in 15 years!

Here’s what it’s like outside right now. Believe it or not, that’s a five foot tall fence with three feet of snow against it.

Happiness is Tut’s Notes From the Universe!

I can’t believe I forgot about these!

I know I said I’d post pictures about the house reno, and I will this weekend, but I just had to drop a note about this crazy amazing service. Mike Dooley, in his “Notes From the Universe” emails (which are very short, very inspirational, and you can pick how many you want to receive in your inbox) are personalized messages that The Universe sends to you whenever you want them. They’re all about loving where you are right now, and having hope for your goals and dreams and future.

So many of us with a medical condition we get to confront daily FORGET that the most important thing is to feel good about ourselves, no matter what our struggles are. We can’t heal if we spend every moment feeling horrible.

So here’s The Universe with a “pick-me-up” for you all!

CLICK HERE TO CHAT WITH THE UNIVERSE

Check out the site, subscribe to the Notes, and have a fabulous day!

PS Last blog I christened myself “Ms. Adventure” and today I noticed my first email was from “Tut’s Adventurers Club.” Coincidence? I think not!

Diet and MS

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I was doing some research on how diet can affect MS, and I came across this article that pretty much describes why I started wondering whether or not the food that I eat could affect my energy levels. It stands to reason that it would, I think. Take a look at this article and tell me what you think, about the concept of disease management through diet, by clicking the “comment” link below.

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Multiple Sclerosis Diet Therapy – Does Diet Really Make a Difference?

Continue reading

Dealing with Multiple Sclerosis – what do you do?

In October 2008 I was diagnosed with relapsing/remitting multiple sclerosis after a series of three overlapping attacks earlier that summer. I was “lucky” because my initial MRI showed “textbook perfect presentation” of the plaques in my head (“Doctor, what’s that golf-ball looking thing doing at the bottom of my brain?”) so I didn’t need a spinal tap or any other really invasive procedures for an official diagnosis. Luckily, my diagnosing physician gave me the opportunity to become involved in a stage 2 clinical trial for a drug called Ocrilizumab, so I’ve never been on a beta-blocker like Avonex or any other self-injectable. My medical treatment has consisted of full-day infusions with steroids and the trial drug, once every 6 months for 2 years, and now I’m in an observation phase. I haven’t had a major attack since starting treatment! Woohoo! I am very blessed to have almost no physical symptoms, except for ongoing fatigue, some minor balance issues, and a dull patch of skin on my right outer thigh. I am fully aware of how lucky I am, but I still struggle to get through what used to be a normal day sometimes. The only real issue I still have is what I call “my dumb days” which my Neurologist tells me is a migraine, but I find it mightly suspicious that I’ve never had migraines before. On those days I can’t track information, it’s really difficult to concentrate, and nothing much actually makes it into my short term memory. Frustrating!

Fatigue is a very common and insidious symptom, since it’s not usually physically apparent. I’m not in a wheelchair or using a cane, so it can be challenging to help other people understand that I’m not always able to perform at 100% all the time. Or sometimes even 80%. It’s frustrating because I’m somewhat of a perfectionist and I’m very task-oriented, so doing a good job is very important to me. I realized pretty early that I needed a new way to look at my life, my tasks, and how I go about doing what I do on a daily basis. It’s led me to some choices and compromises, but I feel pretty good about where I am now! I’d love to help you get to a similar place!

So what have you done to cope? Is there something that’s worked really well for you? Do you have a favorite piece of music, or an affirmation that you go back to, or anything else that just makes it easier to get through the day or night?

Please share! Click on the “comments” link below to get started.

Multiple Sclerosis and Wheelchairs

Very interesting article, touching on an aspect of MS I hadn’t thought of. Read it (I’ve commented below) and leave your comments as well!

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He Warned Me

Eight years ago, Dr. Pasupuleti, my neurologist at the time, reluctantly gave me a prescription for a wheelchair. “When I give my patients this, they almost never walk again,” he told my mom and me.

“But doctor,” I said, “I plan on walking for a long time. Don’t worry. It’s just that right now, I’m so tired. And I’m especially tired of falling down. And lately I’ve been missing out on so much. You understand that right?” I was naively asking a middle-aged doctor to sympathize for the lost social life of a 27-year-old woman. Continue reading