Migrations!

Hello! I’ve been completely out of the loop for a while, and for that I apologize. I’ve moved (not once but TWICE, 2400 kilometers and into a new province!) I’ve gone on Long Term Disability, and right now I’m in the process of migrating my blog to a new site. Hopefully I won’t lose any information, but since I have to cut-and-paste everything into the new blog I’m just going to apologize now for missing stuff. Eventually I’ll redirect http://www.unhasty.com to point here, but until that time I’m just … well, cutting-and-pasting the old stuff into the new blog. It’s giving me a great opportunity to see the information I posted here ages ago, and haven’t looked at in a while. It’s good stuff! In the meantime, I’ll turn off the “publish to Facebook and Twitter” so you won’t be inundated with new notifications for old information. Sorry about that.

Hobbies, Compromise, and MS

I LOVE to sing! I’ve always wanted to take voice lessons, but growing up in a small town meant that opportunity didn’t exist. So now that I live in a city, I’m taking advantage of some of the opportunities here!

I’ve been taking private classical voice lessons for almost two years now, which means I started as an adult after I was diagnosed. I’ve seen too many people say they’re too old or they can’t start something new because they’re sick, but if you don’t start now then when will you? All we have is now!

Anyway, my teacher is amazing and she lets me occasionally take a break from classical to get into pop or random karaoke, which is perfect for keeping me interested and engaged. So far I have 3 songs prepared at roughly performance level, and I’m learning another one right now called “Apres Un Reve” by Gabriel Faure, who I think is one of the most brilliant composers of all time. He’s not very well known, apparently because he wrote “art songs’ (single stand-alone compositions) rather than operas. Here’s an instrumental version of Apres Un Reve performed on violin by Joshua Bell:

 

I just want to point out that you don’t need to be exceedingly mobile to sing. MS doesn’t mean you can’t have hobbies, and it certainly doesn’t mean you should give up the things you love! It just means you’ll get really good at compromise. One of my compromises is that a lot of my voice training involves learning to sound like “healthy me” even when I’m fatigued or battling cold and flu-type symptoms, which I am half the time. I don’t need to sound better than anyone else, I just want to do justice to the songs that I’m singing. I want to be able to sing in a way people can hear the beauty of the song itself, the brilliance of the composition. And maybe one of these days I’ll post video of me singing, and you can let me know if I’ve succeeded!

MS and Quality of Life

MS and Quality of Life from Tanya Asbreuk on Vimeo.

***

I suppose there’s always a compromise between cost and quality of life if you have to pay for treatment. But what’s the cost for your quality of life?

In this video I continue the conversation I was having with Lisa who runs Brass and Ivory, a site chronicling her MS journey with links to a lot of other MS blogs, and Amy who runs MS Softserve, a soon-to-be-available NPO site offering customized learning about MS.

My MS Treatment

My MS Treatment from Tanya Asbreuk on Vimeo.
***
It’s important to be able to make informed decisions on the treatments you going to undergo, especially if they’re drugs that you’re going to be on for a long time. Here I discuss the options that worked for me.

The two ladies I’m talking about or to are Lisa who runs Brass and Ivory, a site chronicling her MS journey with links to a lot of other MS blogs, and Amy who runs MS Softserve, a soon-to-be-available NPO site offering customized learning about MS. Both are amazing resources, so I encourage you to check them out!

Woot! I’m Featured on Another Blog!

This is so cool – I’ve connected with another lady who has MS and runs a fantastic site at http://www.brassandivory.org. (Don’t worry – if you click it’ll open up in a new window and you can still look around here later.)

Anyway, she links other blogs to her site, and she linked me! How cool is that? She also runs the “Carnival of MS Bloggers – a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis” (her quote) that I’ve submitted an article for.

This is her blog past linking “new MS bloggers” to her site:

Brass and Ivory – my shout out!

This may seem narcissistic, linking from my blog to another blog about my blog, (say that five times fast) but it just made me feel really good about reaching out to people with my blog, and knowing there are people out there who appreciate it. So yay!

Project for Awesome – Youtube-er against MS

Caution: Fluffee drops the F-bomb in this video so if you are offended by the F-word DON’T WATCH the video. Just go to the link I’ve posted below to donate to the MS Society of Canada directly if you want to help support their efforts against MS.

***

***

I love “Project for Awesome!” Fluffee is a bit of a goof but he does a good job of laying out how MS can affect people’s lives. I wonder if he’s sold his piece of chair yet? Or the beanie lol?

If you want to donate directly to the MS Society of Canada, click the link below to be taken directly to their donation page. It’ll pop up in a new window. Spend some time checking out the rest of their awesome site while you’re there, too!

Click here to donate to the MS Society of Canada directly

My First MS Symptoms and How I’m Helping Others

***

***

This is my first video interview about this site and why I set it up. I’ve been told that “First is Worst” and it can only get better from here, so I’m hopeful! It was recently pointed out to me that many people with MS develop issues with their vision, so I thought a videoblog would be a better medium of communication (I can’t believe I didn’t think of that, since Optic Neuritis was my first and is one of my recurring symptoms) so I’m going to make an effort to do more videoblogs or at least add audio to the articles.

What’s your opinion? Please share! Click on “comments” link below.